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Blogs
from Germany |
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| Bud to Blossom |
| October 26, 2006 |
Tired and a bit worn this
past Tuesday after my vaccine, I didn’t venture out of my
apartment until late afternoon for a trip to the local organic
grocery store. With only a few items on my shopping list, I thought
about waiting until the following day. But, why do tomorrow what
can be done today?
Walking along the neighborhood park and winding up an adjacent
side street, I arrived on the main boulevard in the south of Cologne.
Instantly, I noticed other people. Yes, other people. I really
noticed them. I felt them. And I experienced a boost of joy inside
of myself from being around people.
I have always liked people. However, I haven’t always known
how to connect with them. And there, suddenly, on Main Street
in the south of Cologne, the radiance from simply being around
other people struck me in my post-vaccine daze. I didn’t
do anything. I didn’t talk to anyone. I didn’t smile
at anyone. I simply felt joy from being around other people.
Maybe you’ve always connected with people. Maybe you were
nominated the high school prom king or queen, maintained all of
your friendships from childhood and college, promoted throughout
all of your professional positions, and now live with your spouse
and kids in a wonderful community where your closest friends live
on your block. However, for those of us who have not necessary
felt like we’ve fit into the world, my experience was a
big deal.
In truth, I have connected with many people before. The evolving
element is how I connect with others. It isn’t based on
co-dependency. It isn’t based on other people’s needs.
It isn’t based on connecting with other people in order
to feel love and approval. The way I connect is transforming through
the inside out. As I become more grounded in who I am, self-nurturing,
more attentive to my needs, and natural rhythm, the essence of
my being, my force of life within, is more able to connect with
life around me.
Over the last two days, I haven’t been able to sit in my
apartment and write on my computer for hours and hours. I’ve
needed to go outside. I just wanted to be out in the world with
other people. In cafes, restaurants, stores, parks, anywhere.
I also haven’t used my bike as transportation. Instead,
I strolled at my body’s natural pace and with the surrounding
flow of life. I discovered stores, restaurants, art galleries,
houses, and historical monuments that I had passed without seeing
in detail dozens of times previously. I cannot imagine what I’d
be missing if I had my car here.
The central point of this blog is that I like people and connect
with them. Yes, everything we ever need to know, we learned in
kindergarten. I told you my nephew and niece have all the answers.
|
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| 9 Million Dendritic Cells |
| October 24, 2006 |
I got knocked up last night
by 9 million rockin’ dendritic cells. And did they kick
my butt. I was knocked down within hours as I surrendered to bed
overcome by flu-like symptoms, including a low-grade fever, significant
aches and pains, and intense chills. My discomfort lasted throughout
the night as I woke up every few hours peering at my clock and
wishing the pain away. Since few things are linear in life, my
fifth dendritic cell vaccine may have presented the most uncomfortable
vaccine experience yet. And with a degree of grace, I knew my
discomfort was a transitory event. (Okay, I was also thinking
that I really needed some major retail therapy to aid my recovery.)
Perhaps more than anything else, the intensity of my experience
in Cologne has further taught me that all things in life are temporary.
Attachment to experiences, perceptions, emotions, and even people
works against the natural flow of life.
I was psyched to have 9 million dendritic cells in yesterday’s
vaccine number 5, compared to 2.7 million in vaccine number 4.
I asked Dr. Gorter to explain the dramatic shift in numbers throughout
my vaccine experience. He doesn’t know. The human body,
in its vast magnificence, sometimes functions outside of a definable
framework.
My treatments, and time in Cologne, will come to an end in less
than two months. Reflecting back to one year ago, I could hardly
see myself having arrived at this destination. Research, careful
planning, a steadfast focus, incredible support from a lot of
people, and my willingness to make a somewhat calculated leap
into the unknown have allowed me to have this amazing life experience.
Gratitude abounds, to many, including myself.
To all of my fantastic blog readers, I invite you to check out
my new Q&A entitled “What
is the Type C coping style and how can I learn more about it?”
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| More On LIFE Beyond Cancer,
and Treatment Updates |
| October 18, 2006 |
| I woke up this morning and
made myself a delicious glass of cucumber juice! I love the fresh,
lively taste of a juiced cucumber early in the day. Now that I’m
able to eat again, I am striving to re-enter my routine. I still
struggle with my diet though. The “should this” and
“should not that” continues to drive me insane. Sage
advice from my new British friend Jenny, another patient at the
clinic, encourages me to be “very, very naughty!” She
isn’t referring to indulgence in Twinkies or cotton candy.
Jenny recognizes how I am constantly trying to be so good and do
all the right things, which can translate to a lack of permission
to simply “be” in the world. I need to exist outside
of my self-imposed box. I continue to remind myself that freedom
is a choice. |
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| Last week, I wanted to pack my bags and
run toward the next United Airlines flight to San Francisco. However,
through life’s omnipresent ebb and flow, I’ve returned
to a deep appreciation for my world in Cologne. Walking south on
my cobblestone street yesterday morning, I carried my fabric bags
to Tuesday’s organic market just several blocks from my home.
With four food stands set up in front of what I consider Cologne’s
most holy church, I filled my bags with fresh vegetables and laughed
with the market attendants as we attempted to teach one another
the words for various vegetables in our respective language. My
day continued with several hours of work at my computer, and a late
afternoon bicycle ride to the gym where I thoroughly enjoyed a long
overdue workout. I then had the pleasure of my friend Nina’s
company who was in Cologne for the day from Münster. We chatted
and ate at the most charming café filled with chandeliers
and other antiques. Before bed, I had a brief conversation with
my nephew James, who told me he was making a bat and ghost with
his homemade pumpkin play do. James then asked, “Will
you play with me?” My heart melted in delight. “Yes!”
I responded. “Yes, I’ll play, play, play with you when
I see you at Christmas!” |
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| Life is for living.
Over the last week, Jenny and I talked a lot about and experienced
the joys of living life in the midst of dealing with illness. In
a dynamic tour de force, last weekend we adventured together exploring
Cologne’s neighborhoods, negotiating subway cars with my bicycle,
translating menus in German, and meandering along the Rhine from
twilight into dusk. We discussed many things, including health,
illness, healing, and what Jenny refers to as the
parallel universe that begins with a cancer diagnosis. |
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| I remember walking out of the hospital
in New York City on February 27, 2004, the day I learned of my brain
tumor recurrence. The brisk winter air mingled with the sun’s
afternoon rays against my skin. A shadow lay on the city’s
sidewalk patterned from a schoolyard’s chain linked fence.
The high-pitched voices of children during recess blended into an
unbroken melody. The sounds of city buses braking and accelerating
echoed off the nearby avenue. The world around
me moved in all the same ways, and yet something inside of me stopped
with the recognition that I wouldn’t continue forever. For
the short-term, I felt overcome by the sheer terror of my life turned
upside down, once again. I lost the breath of my previous existence
that lacked a pervasive awareness for my own mortality. As part
of my consciousness ceased to exist, another part of me felt more
awake. My sense of self began to evolve as I integrated into my
new reality. Somehow, my spirit’s resilience found a way into
living again. And in my moments of grace, my spirit has retained
an increased wakefulness as a result of my confrontation with mortality.
To me, that is life’s biggest irony.
Confront death, and learn how to live more fully. |
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| In the aftermath of the Ode
Magazine article about Dr. Gorter and the Medical Center of Cologne,
a number of patients from the United States and Canada have begun
treatments at the clinic. I’ve met many of them; I’m
humbled by their overwhelm from coming to a foreign land and trying
to create some stability in the midst of the unknown. Their experience
reminds me how I felt upon my arrival only four and a half months
ago, and how far I’ve come. I’m also reminded through
their experiences how I felt when I first started the immunotherapy
treatments. Even though the treatments aren’t toxic, they
are definitely uncomfortable at times. During my discomfort, it
has been so important for me to simply recognize the experience
as difficult. To acknowledge the truth can
offer deep relief. |
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| Treatment Updates |
| After three weeks off, I had another
hyperthermia treatment with infusions last Thursday. I felt so
wonderful after my treatment. My body and being felt strong, clear,
and energized. After a discussion with my docs, we decided that
I’ll now have hyperthermia and infusions once weekly. Alas,
so much for my treatment hiatus.
Due to my viral infection, my blood draw for my next vaccine
was postponed almost two weeks. After the results from my stool
test showed no bacteria or viruses, I had the blood draw this
past Monday, and will receive my fifth vaccine on October 23rd.
I mentioned in my September 15th blog that the clinic would repeat
my immune status testing. I had my blood drawn on September 18th.
However, someone dropped the ball somewhere along the line, and
only my immune status testing was performed, and not my immune
function. (My understanding is that immune status testing has
to do with thymus function and the number of natural killer cells,
while immune status function relates to natural killer cell function.)
I was then told that there was a delay in the laboratory blood
analysis of my immune status, and because my blood sat without
being tested for several hours, the results were not considered
accurate. My immune status test will be repeated with the immune
function test. Since I was sick with the viral infection, my blood
draw for these tests has been delayed until October 23rd.
Earlier this month, Dr. Gorter and I chatted about my treatment
progress and next steps. I expressed overwhelm through my words
and tears for the uncertainty about the treatments’ efficacy.
Although my deepest sense is that the treatments are producing
healing, the ultimate proof comes from the MRI scan, which is
a mere photograph in the schema of life. During our conversation,
Dr. Gorter sat with my questions and fear. In the most candid
tone and demeanor, Dr. Gorter said he is confident that my condition
can be reversed with time. He also explained that the results
of the treatments against low-grade disease take longer to show
up. Complete tumor eradication after six months would be amazing.
In my intentions, I hold the image of a clear November 2006 MRI
scan of my brain. That is my goal. And if my goal isn’t
achieved then, I’ll get there. |
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| Alchemy |
| October 13, 2006 |
Sometimes I don’t
want to be where I am. I feel stuck. In these moments, I expend
energy dreaming about somewhere else that seems more appealing.
But when I stop fighting what is, I’m
able to relax into myself and find the opening. There is
always a little light that I can enter leading me into the next
chapter or phase of my journey.
I’ve been sick for over a week and a half. The clinic has
now tested my stool for bacteria and viruses, and the results
are pending. I’ve spent several fleeting moments feeling
very frustrated and even sorry for myself about being sick. It
is not just the gastroenteritis viral infection, but also that
on top of dealing with other aspects of my health for so many
years. It feels like my entire adult life that I’ve been
immersed in illness, and the quest for wellness. Sometimes I feel
like my life is passing me by when I’m sick. And sometimes
I feel like my life is passing me by when I’m not “sick.”
In both scenarios, life feels like struggle.
I know that when I’m caught in any type of pattern, such
as illness, the universe is presenting me with an opportunity
to learn and grow. I’ve also come to understand that when
I have life experiences that repeat themselves over and over,
I need to change something in myself to alter what I perceive
as an energetic pattern. This is
tricky territory, as I don’t blame myself or anyone else
for being sick or “attracting” specific types of adversity.
With that said, I believe that patterns
can be changed by eliminating the original agreement and belief
system that created the potential for the malady, and subsequently
creating a new program, or belief system, in support of life.
I believe that each person has access
to his or her original blueprint that contains perfect health.
In this blueprint, the individual is whole. It is this wholeness
that I’m aspiring toward. I’ve learned for
myself that this wholeness is severely compromised through co-dependency,
lack of personal boundaries, taking on other people’s energies,
and embodying a belief system that is contrary to health.
In the original blueprint, the immune
system, which is the human body’s natural protector against
disease, is working optimally. In this state, the immune
system is able to recognize dangerous substances in the body such
as cancer cells and destroy them. In order to work effectively,
the immune system must distinguish between self and non-self,
or healthy cells versus diseased cells. However, cancer develops
when this process goes awry. That is, diseased cells grow when
the immune system is unable to recognize non-self and act accordingly
to protect self.
Gabor Mate, M.D., in When the Body
Says No: Understanding the
Stress-Disease Connection,
explains, “The first essential task
of the immune system, too, is distinguishing self from non-self.
Thus immunity also begins with recognition.
Recognition is a sensory function, performed in the nervous
system by the sensory organs. We may rightly say that the immune
system is also a sensory organ. Any failure of the immune system
in its responsibility of recognition would expose us to as much
danger as we would face if our capacities to see, hear, feel or
taste were impaired. Another function of the immune system is
memory. The immune system must also have
memory: it needs to recall what in the external world is benign
and nourishing, what is neutral and what is potentially toxic.”
Internal confusion about self
versus non-self may be related to the development of cancer. Science tells us about cancer developing when our own cells divide.
Maybe cancer cells divide
when the individual splits away from his or her true self. And
this dishonoring of one’s true self and lack of authenticity
is the epitome of the Type C coping style. On the other hand,
by honoring one’s true self and coming fully into one’s
wholeness, cancer cells may not thrive in the same divisive
environment.
And this is exactly what I’m striving to accomplish. I
am focused on coming into my wholeness and embodying my full self.
I am seeing with more specificity how I’ve taken on certain
energies and belief systems that are not my own. And some
of it is not of this lifetime. Yes, I am aware of past lives and
how previous lifetimes influence me today. The details might be
shared another time, and likely in another format. For now, I’ll
convey that my insights about other energies, belief systems,
and past lives didn’t just show up last week. I’ve
been aware of some of it for many years. I know that some people
will not be able to embrace what I’m saying. However, I
need to speak my truth in the pursuit of authenticity and healing,
for others and myself.
By choosing authenticity, I’m able
to dwell in my innate wholeness. I decide whether or not
I am whole. Without a doubt, this is a choice. Going into remission,
or being cured of cancer, may not be a choice. However, healing
through the embodiment of one’s brilliantly unique, authentic,
whole self is available to each and every one of us. |
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| Infection, Self-Healing
Mechanisms, and Blatant Political Commentary |
| October 8, 2006 |
| Last week, I was overcome by a
gastroenteritis viral infection, as diagnosed by Dr. Gorter.
And did it hit me hard! I was down for the count in bed for
most of the last week when I didn’t drag myself to the
clinic. Viral infections cannot be treated directly with medicines
such as antibiotics, but only symptomatically. I received
infusions, including a pink cocktail (pink for a brain tumor
patient, not breast cancer), with supplements to support my
immune system against the viral infection, and help my pancreas
and intestines repair. My hyperthermia and blood draw for
my next dendritic cell vaccine were postponed one week. I
was also supposed to have a follow-up blood draw for immune
function testing, which was postponed, too. I had a steady
fever for three days, which spiked at 102.5 degrees Fahrenheit.
My body has been cleaning itself out, and I’ll allow
the reader to make their own interpretation of that. I hardly
ate any food all week. I’ve lost at least 8 pounds,
and now fit into a very cool pair of BCBG pants that I bought
several years ago at the fabulous Nordstrom Rack. Unfortunately,
they are white, and not in season (but still in style!). |
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| This is not the
way to lose weight though. I also missed the Frankfurt
Book Fair, which is the biggest annual literary event in the
world and where I wanted to seek out an agent for my book. My
way must be another way. And, I spent my birthday sick in my apartment.
Ultimately, the beauty of my 33rd birthday celebration was that
I spent it with myself. I celebrated in simple ways. I sang to
myself, drank tea in bed, daydreamed, wrote, plucked my eyebrows,
made soup, looked at the red rosebuds I bought myself for my birthday
week, watched the clouds, birds skyward in flight, and children
playing in the park visible from my bedroom window. Birthdays
represent another “should” in that they need to look
a certain way. Truly being with my authentic self is the best
way for me to celebrate my life. |
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| Fever! |
I have the strong sense
that the viral infection is somehow aiding my healing process.
Given my circumstances, I’m psyched about the fever I had
last week. Fever is a very strong tool
against cancer. In a November 2, 2002 New
Scientist article called “Dr. Coley’s Famous Fever,”
Stephen Hoption Caann, an epidemiologist at the University of
British Columbia, says the immune system works at its best during
a fever when the body produces more immune cells. Dr.
William Coley, a surgeon at Memorial Sloan Kettering Cancer
Center in New York in the late 1800s, knew this well, and used
fever to successfully treat so-called terminal cancer patients.
He noted that cancer patients who had infections and fevers miraculously
recovered from fatal cancers. As a result, Dr. Coley created a
cocktail with bacteria that he injected into patients, who then
developed fevers and had their cancer disappear.
I can only hope that my fever helped wipe out my former tumor.
Dr. Gorter remarked that my 3-day fever also indicated the flexibility
and strength of my immune system to defend itself against the
viral infection. In addition, colds and flus are the body’s
natural way of cleaning out what doesn’t belong. Several
healthcare practitioners that I’ve consulted with over the
years inquired if I got sick as a child. A growing body of evidence
suggests that there is a correlation between infections, fevers,
and cancer. That is, the more infections people have, and especially
with fever, the less likely they are to have some cancers. The
human body truly has an elaborate and powerful innate healing
capacity. Our bodies are wise enough to self-repair, but sometimes
need a push in that direction. |
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| More on Self-Healing
Mechanisms |
Do
Western medical therapies suppress the body’s self-healing
mechanism? Chemotherapy and radiation damage
the immune system, although I understand why many cancer
patients choose these therapies. They believe it is their only
option. It is the easier route. Sometimes it works. And that is
what insurance companies pay for. However, there is another cost
from chemotherapy and radiation to the immune system and body
as a whole. The toxicity from these treatments also explains why
it isn’t exactly logical to combine them with immunotherapy.
Aspirin, which has been traditionally
used against fever, also suppresses the body’s self-healing
mechanism. Fevers are activated in the body for important reasons,
including burning away unwanted visitors. Unfortunately, the more
the immune system becomes suppressed, including with flu shots,
the more the immune system becomes confused about its function.
This has a detrimental long-term impact on health.
Some aspects of the Western lifestyle
in United States, which is my place of upbringing and orientation,
don’t support the self-healing mechanism. For one,
the American workplace provides employees with a limited number
of sick days, and usually just one week of vacation to start.
Before I became self-employed three years ago, I had more than
one boss suggest that I take aspirin when I was sick, or some
other chemical concoction. I was wanted back in the office, pronto.
I always preferred to let my body do its thing and follow its
own wisdom. The workforce in Germany, on the other hand, provides
an unlimited amount of sick days (I don’t know if this is
with every employer), and on average at least four weeks of vacation
starting out in a job. |
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| Healthcare for All |
Germany provides universal
healthcare to all of the nation’s citizens, just like
every other country in Europe. I have a German friend with
a potentially life-threatening medical condition. She is unable
to work, but still has quality health insurance that is less than
two hundred Euros per month. My friend is currently at a health
spa in Germany for the entire month of October where medical doctors
and alternative practitioners are treating her. Along with high
tech treatments, she will receive therapies such as massage and
have the opportunity to relax in therapeutic waters. And, the
entire month of treatments, her lodging, and transportation are
covered by her health insurance. |
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| Healthcare in the United
States |
This is very different
from the United States of America, “the
land of the free.” In the United States, sick people
are often given the most minimal healthcare insurance plans available,
if they can even afford them. In the summer of 2003, I was diagnosed
with acute Epstein Barr virus, and took a leave of absence from
my job two months later on short-term disability. After my eleven
weeks or so on disability, I was still very sick and my doctor
wouldn’t release me back to work. My employer subsequently
laid me off, health insurance included. My best option for health
insurance at that juncture was
COBRA, which is available due to a U.S. federal law that provides
temporary continuation of health coverage at group rates. I then
started my business, Healing
Focus, which I dreamed up staring at my ceiling when I was
sick in bed with the Epstein-Barr. Fortunately, I was able to
earn money working part-time from my home, which was all I could
handle physically.
My COBRA ran out after a year and a half, and I then applied
for individual health insurance through the state of California.
As a result of my medical history, I was denied the comprehensive
coverage plan I requested. However, since I had continuity of
coverage from my previous plan, the insurance company was legally
required to offer me at least minimal coverage. I pay almost $500
per month for health insurance that is bare bones, and not even
paying one penny for my treatments at the Medical Center of Cologne.
And now, they are trying to kick me out of the plan because I’m
residing outside of California temporarily. I have spent several
hours over the last week when I’ve felt utterly sick with
my viral infection printing out forms, filling them out, writing
letters, and mailing these material to ensure they arrive in California
next week to meet the deadline of response imposed by my insurance
company. It is disgusting.
At least I have some health insurance coverage. According
to the 2006 U.S. Census report, approximately 46.6 million Americans,
or 15.9 percent of Americans, were uninsured in 2005. How can
a country that is so rich not provide its citizens with healthcare?
Even after Hillary Clinton’s failed attempt at universal
healthcare in the 1990s, there are continuing U.S. efforts in
that direction. The California State Senate approved legislation
to provide universal healthcare to all Californians this past
August. However, in September, Governor Schwarzenegger vetoed
this bill due to his dislike of “socialized medicine”
and associated costs. A report commissioned by the Lewin group
stated that a program like the one approved by the California
State Senate would save California approximately $8 billion in
the first year. Imagine, saving money, and providing healthcare!
According to the California Healthcare
Foundation, 1 in 5 Californians are without any health insurance
coverage. People between the ages of 21-24 are most likely to
be uninsured, with the elderly coming in second, as well as those
with pre-existing conditions. A study reported in Health
Affairs shows about half of all filed personal bankruptcies
in the United States cited medical
causes as the reason. This study also found that 75.7 percent
of those that filed bankruptcy had health insurance at the onset
of illness. |
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| Dire Straits |
| I’m overwhelmed with
the state of the nation in the United States. And the United States
is in a state of overwhelm. I’ve been thinking about the people
in the south affected by Hurricane Katrina. Even a year later, the
U.S. government hasn’t adequately responded, and many people
who paid for wind and other types of insurance haven’t received
payments for the loss of their homes from companies such as State
Farm. I’ve been thinking about the three school shootings
in one week, the victims, their loved ones, and communities. These
shootings, and many others, could be prevented if people weren’t
allowed to have guns. In Europe, gun control exists and this type
of violence doesn’t happen. Why are people allowed to have
guns in the United States? The gun lobby is fierce in Washington,
DC. Politicians give the gun lobby their power, and receive campaign
contributions in return. The U.S. government isn’t taking
care of its own people. Instead, the United States spends its money
on the military and wars in other countries, which are producing
rampant anti-American sentiments around the world. When
will the United States government wake up? And how will Americans
find a way to create a better place to live? |
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| 33 Candles |
| October 6, 2006 |
TODAY
IS MY 33rd BIRTHDAY!!!
I’m so happy it is my birthday! I’ve already sung
to myself several times!!!
This day is glorious. I’m happy today, on my birthday!
In honor of my birthday, I’d like to share
the following words authored by David Culiner. You can get more
information at www.lovethislife.net.
YOU ROCK, David, for your words of wisdom to the world. I’m
thrilled to share them.
Love this Life… is about celebrating the
moment
and that we’re not guaranteed or owed another day
and how cool it is that what we hide can actually be the fuel
towards our glory
and that it’s not so bad being proven wrong
Love this life… is about welcoming the
blind turn
and the possibility that there’s no such thing as coincidence
and that empathy is incredibly sexy
and that it’s never too late to pick up a guitar or a paintbrush
or to make an amend
or to make a new friend
Love this life… could be rekindling a
past flame
or igniting a new one
or shapeshifting from a dreamer into a doer
or savouring the caress of a love long gone
Love this life… means whatever it is you
want it to mean because
Love this life… is a celebration of you and your path
Love this life… cuz’ it could go
at any second
you rock
© 2003, David Culiner |
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| Dear Tumor |
| October 2, 2006 |
| Dear Tumor,
This is a note of gratitude and love. I want to
thank you for all that you have taught me. As we’ve lived
together over the years, my life has become richer in your presence.
My life has acquired meaning and vitality that I didn’t
possess before the announcement of your arrival. I have learned
very important lessons about life, death, love, family, friends,
and spirit.
This Friday, October 6th is my 33rd birthday. I
need for you to do something for me, and you might consider it
a birthday present. I need for you to leave my body.
I promise myself that I’ll keep the lessons.
I promise myself that I’ll continue learning and helping
other people. I promise myself that I’ll live my life fully,
boldly, and brilliantly. And most of all, I promise that I’ll
be true to myself.
And with those promises to myself, I say goodbye
to you.
Love,
Jeannine |
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