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Blogs
from Germany |
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| Fifteen Million Dendritic
Cells & Mom’s Arrival |
| July 20, 2006 |
| Fifteen million dendritic
cells swarmed into my blood stream to crack the code between self
and non-self. No longer able to hide from my immune system, my brain
tumor cells were exposed to proliferating T cells stimulated by
my dendritic cells to mount an attack. The “army” increased
in strength during round two as my immune system was educated for
a second time through the application of dendritic cell vaccine
therapy. At least this is the theory. |
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Three hours after the
dendritic cells entered my system, my temperature hit 101.4, my
body sweated, ached, and the pains felt worse than last month.
I considered the discomfort minor as I kept my eyes on the prize.
The next day I felt tired and drained, yet with increased energy
compared to last month’s day after. I went by the clinic
and received an intravenous infusion of alpha lipoic acid and
B vitamins to stimulate my immune and nervous system functions.
Barb, my mother, arrived this morning. I am very grateful for
her visit and the quality time we will spend together. Only hours
off the plane, she joined me at the clinic for my localized hyperthermia
and cocktail medley. I watched her watch me underneath the machine
with a large device resting on the left side of my head, my body
sweating, and a large needle in my outstretched arm attached to
an intravenous drip. As my mother walked in and out of the room
several times, I wondered about her internal journey to find some
place of comfort entering my world of cancer treatments. Through
a small mirror behind one of the medicine cabinets visible from
the treatment table, I witnessed a micro-expression of my mother’s
angst. I caught a glimpse of her perceived helplessness. Asking
me if I needed anything, I told her I was fine. I wiped the sweat
off my face with the towel next to me. I reached down to wipe
the sweat lines between my thighs. Tension intensified in my legs,
and I kicked them upward attempting to shift their muscular rhythm.
Watching the timer tick away on the hyperthermia device, my relief
burst out when the minutes became seconds until there were none.
I felt relieved my mother would only see me in such form for
one more treatment next week. There are moments in life when children
feel a need to protect their parents from pain and struggle. This
I’ve felt many times before. And yet, the dynamic today
was different. Instead of wanting to protect my mother from her
pain, I wanted to shield myself from my mother’s desire
to take on my pain. I recognize the tremendous challenge for parents
to interpret their child’s pain and struggle from the precise
vantage point in which the child experiences it. If I had the
conscious awareness in the moment, I would have embraced my mother
and explained that I’m an individual, an adult, and my pain
and struggle is my own. It is vast, glorious, integrated with
much light, and integral to who I am today. Rising off the treatment
table, I smiled at my mother and thought that some things in life
need to be done alone. |
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| Ebb
and Flow |
| July
15, 2006 |
| I am very irritable.
I just finished week five of treatments and my body is exhausted.
Exercising at the gym this past Tuesday, I definitely noted my
decreased stamina level. And I haven’t been sleeping well
in Cologne. The last several summers in Germany have been record
level scorchers. Nobody has air conditioning, except for the five
star hotels. The city is also noisy. People party until all hours
of the night. I happen to live on one of the biggest party streets
in the city. I told the housing agency I wanted a quiet apartment,
and then inquired with the apartment manager about the same, but
alas, I landed in party central. I plan on moving the end of August
when my contract ends.
I’m not surprised that I feel irritable, and increasingly
so over the last several weeks. My immune system is working hard
to integrate the therapies and hopefully mobilize against the
brain tumor. Hopefully tumor cells are dying off.
What do I mean by irritable? I feel fatigued and with a short
fuse. I feel physically uncomfortable in my own skin. As a highly
sensitive person, I might feel certain aspects of my body’s
responses to treatments more than most. At the same time, my strong
body, mind, and spirit help me persevere. And I recognize that
what I’m experiencing is very mild in comparison to what
most cancer patients endure from treatments.
The colonics that I’ve had
twice over the last two weeks have provided temporary relief to
my irritability. But even with the colonics, my irritability surfaces
again. Earlier today, I felt strongly compelled to visit Cologne’s
largest city park called Stadtwald, which translates to “urban
forest.” After finding a sunny green patch in a spacious
field surrounded by trees, I surrendered to the Earth. Within
a short time, I became completely relaxed.
Although I continue to track why I might be feeling one way or
another from moment to moment, I remind myself to sometimes pause
my internal tracking feature. My internal sensations ebb and flow,
and sometimes it is impossible to identify the source of the emotional
highs and lows, aches, and pains. Since mind-body research has
demonstrated that the mind exists within the body, my evolving
emotions are likely a partial reflection of my transforming internal
biochemistry.
Being in another country for cancer treatments
definitely adds another level of challenge. Although I
lived in Europe during college for one year in both London and
Spain, and traveled in Mexico and Guatemala for four months alone,
my previous experiences in cultural immersion only go so far due
to the added challenge of receiving cancer therapies in a foreign
land.
I’ve acclimated to my environment and feel quite comfortable
in Cologne, and yet my system is still constantly confronted with
new stimuli. During a time when I need all of my resources for
my health and healing, I don’t always have energy for the
extra stress. However, I’d likely be experiencing some stress
whether I’m living in Germany, California, or anywhere else.
The stress from cultural immersion is a minor inconvenience for
me. And, as I’ve written in previous blogs, I’m really
enjoying many aspects of being abroad.
The German language unequivocally poses the largest barrier.
And everyone in Germany does not speak
English! I have conversations several times each week where
I am trying to communicate with people who don’t speak any
English. The dialogue moves back and forth between English
and German until I resign that we cannot understand one another.
With that said, many people here do speak
English, and I have successfully gotten around and found
whatever I’ve needed without speaking German for a month
and a half. I hope to take some German language classes this fall
if I have the time.
As I was concurrently reading three books about the psychology
of cancer patients in bed last night, I noted my
profound obsession with healing. I have been so obsessed
with healing for my entire adult life. My hands are gripped tightly
around my healing process. I know I need to let go, or at least
loosen the hold. And yet, this is the time I am able to focus
more than ever on my healing. Regardless, I recognize I need more
balance. I’m not referring to a social life, as I certainly
have a busy one here, but the incorporation of hobbies, more meditation,
time in nature, and just being. I feel most
relaxed and internally balanced when a deep
stillness surfaces within me and I’m able to float
from one activity to the next. I’m not attached to anything
or anyone. I am not looking at my watch. I am not thinking about
what I’ll do next. I am not responding to other people’s
needs. I am simply in my own, unique, distinct
rhythm.
Each moment, day, and week offers new challenges and possibilities,
as well as new experiences. This week my
mother, Barb, arrives from New Jersey for a ten-day visit!
We are going on an excursion for part of that time, and I will
have no treatments for one week. Before then, I’ll have
a few more therapies, including my second dendritic cell vaccination.
I’ll aim to offer a brief report on my response to the second
vaccine before Barb and I hit the road. |
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| Mapping
Month One of Treatments |
| July
10, 2006 |
I’ve
completed month one of my treatments as of last week. My body
and psyche are now accustomed to the routine of localized
hyperthermia twice weekly during which I receive an
intravenous infusion of Vitamin C, minerals, homeopathics, and
thymus peptides. And of course I received my first dendritic
cell vaccine, as you might have read.
About two weeks ago, Dr. Gorter and I discussed
specific components of my immune system status measured through
a blood test. Dr. Gorter claims the results allow him to tailor
my treatments to the strengths and weaknesses of my immune system.
According to my test results, my thymus
and natural killer cell function are the two particular
areas of my immune system needing significant support.
Dr. Gorter said that in his experience, all cancer
patients, as well as those with chronic fatigue syndrome, have
imbalanced thymus function. I am now receiving thymus peptides
through intravenous infusions to regulate my thymus.
Regarding my natural killer cells, both the number
of natural killer cells in my body and their function were tested.
The number of natural killer cells in my body is slightly low,
but that wouldn’t matter a lot if they were functioning
strongly. Of more concern, my test results indicate my natural
killer cells are functioning well below capacity. |
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| As of last
Friday, mistletoe was incorporated
into my immunotherapy protocol to boost my natural killer cell function.
I’ve started to inject myself with mistletoe twice weekly
and will continue this routine for the next five year. Yes, five
years initially seemed like a long time to me as well! My mistletoe
schedule over a five-year period offers an important perspective
and context for the medical approach of immunotherapy. |
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Conventional
cancer care in the United States traditionally aims for a quick
fix, and that is complete, immediate removal and/or eradication
of the diseased area. Surgery, chemotherapy, and radiation, almost
all of which have severe adverse effects, might diminish tumor
size, but at a high cost via many protocols through cutting body
parts, poisoning healthy cells, and leaving many patients with
long-term and late effects from treatments. In my experience,
conventional cancer treatments only target the surface of disease
and not the root cause, which explains the source of some recurrences.
Of interest, the Japanese say the American goal
of zero tumor volume is wrong since many conventional treatments
poison the body and immune system along the way, which leaves
patients with an impaired quality of life. Researchers at the
University of Kyoto in Japan treat some patients with dormancy
therapy to achieve biological rest or inactivity of tumor
cells. As Ben Pfiefer, MD, PhD, of the Aeskulap
Clinic in Brunnen, Switzerland, explained to me, dormancy
therapy gives patients a much smaller portion of conventional
chemotherapy with the goal of preventing tumor growth. This treatment
approach has provided patients with a higher quality of life.
Research in Kyoto, Japan indicates that in the end, survival isn’t
different for certain patients treated with dormancy therapy versus
conventional chemotherapy protocols in the U.S.
Contrasting the goal of a quick and sometimes temporary
fix via conventional cancer care, immunotherapy treatments aim
to repair and restore the immune system over a long period of
time. Strengthening the immune system and internal healing mechanisms
in the body over time is a completely different system of medicine
compared to how most Americans view and experience medical care.
Along with my treatments at the Medical Center of
Cologne, I’ve incorporated other therapies into my regimen
that I have found very conducive to healing over the last eight
years. Acupuncture, chiropractic adjustments, colonics,
and the occasional massage support internal balance within
my body, ensure ongoing movement and elimination of toxins, and
invite some degree of calm. I’m also taking several supplements
recommended by Jeanne Wallace, PhD, CNC, of Nutritional
Solutions to enhance the effects of my immunotherapy
protocol, which Dr. Gorter approved. In addition, I eat organic
foods, a vegetarian diet (with the occasional piece of fish),
almost no sugar or dairy, drink fresh green vegetable juice, exercise,
and meditate. So, my schedule is full. I’m also
working part-time for clients, and writing about my healing journey
as much as possible. Along with the blogs, my goal is to write
a memoir, or at least write a portion of one, while I’m
in Cologne. |
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| Regarding
the power of diet, I’ve had the privilege of detoxing several
times over the last two plus years at the Hippocrates
Health Institute (HHI). With each detox at HHI through
raw foods, green juices, and wheatgrass, my body has released a
significant toxic load. Diet is a very powerful tool against
cancer to cleanse the body of toxins, strengthen cells and organs,
foster an alkaline environment, and transform other aspects of the
internal biochemistry to create a state of health. I consider
it tragic that doctors are not taught about diet in medical school,
and catastrophic that they are not able to educate their patients
about the health benefits from food. I think every health care professional
should attend The
Center for Mind Body Medicine’s Food as Medicine program,
a one week intensive with science based nutrition education equivalent
to a semester’s worth of training. |
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| Are there
any adverse effects from my treatments? That is a hard question
to answer, especially since I’m often challenged to identify
the true source of ailments within my body. I have certainly been
fatigued, and yet that has been an ongoing issue for me since I
was diagnosed with the Epstein-Barr virus in July 2003. I’ve
had headaches, muscle aches, and irritability, although all of those
ailments improved significantly last week after my colonic. |
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| The ongoing
routine of receiving cancer treatments, which is something I’ve
never done before, feels weary in moments, especially in an unfamiliar
environment. Going to the clinic several times each week, receiving
intravenous infusions, sticking myself with needles, tracking my
protocol, adjunct treatments, and related needs all serve as reminders
that I’m dealing with a very serious medical condition. And
yet, I don’t really feel sick, and I definitely don’t
look sick. These are contradictions I’ve lived with for many
years, and they require me to live in two worlds, that is, the world
of cancer, and the world outside of cancer, or normal, everyday
life. This dichotomy has literally created havoc in my psyche as
I’ve shifted between being a patient to living the life of
a vibrant young woman. I strive to track what surfaces as foremost
in my identity, as well as the associated feelings and texture of
my internal terrain. When I notice myself meandering toward an emotional
edge over which exists tremendous vulnerability and awareness of
mortality, I breathe, and turn in one direction or another. I’m
learning to consciously choose the world I dwell in moment to moment.
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| In a
recent telephone conversation, my brother John asked, “Now
that you are into the process and receiving treatments, are you
still confident about your decision?” Appreciating his question
on many levels, my mind wandered back in time. My research into
more aggressive therapies, clinics, site visits, decision to pursue
treatments in Cologne, and organization of my move took me about
ten months. I also had to cultivate enough confidence within myself
to take the leap. I hit several roadblocks along the way, many
of which resulted from my own fear.
Of course I cannot predict the outcome of the treatments. I
only know the treatment approach seems to make sense to me. I
only know I’m meant to be exactly where I am. I only know
I’m on a healing journey, until the very end. |
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| Beyond
the Rope’s End |
| July 1, 2006 |
I avoided the laundromat for 24 days,
and yes I brought that much clothing with me. Actually, I have
enough underwear for an entire month. After packing my biggest
suitcase with my dirty clothes, towels, and bedding, I schlepped
my bag through the streets of Cologne. I had been delaying my
trip to the laundromat with anxiety for not knowing how to work
the washer and dryer, where to insert the soap and fabric softener,
and pay for the service. I had inferred that the system would
be exceedingly disorganized due to my ongoing and now intensely
dreaded interactions with Deutsch Telecommunications, the company
providing me with my telephone and Internet service. |

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| However, much to my delight, Cleanicum
is not only the funkiest laundromat I’ve ever come across
with Miele machines, modern décor, and a full-service
bar, but also the most organized with a highly efficient computerized
system for both washing and drying clothes. And, as I entered
the laundromat and was quickly tutored in Cleanicum’s
process by a kind German man, I realized I only needed to
ask for help. |
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| My first month in Cologne,
now looking back, has been an experience of extremes. I’ve
felt overwhelmed landing in an unfamiliar place and negotiating
the environment where the people speak another language. Tasks
I considered simple in the U.S. such as buying groceries, ordering
food in a restaurant, finding my way to new destinations, and
reading my mail (in German) have felt utterly impossible in moments.
Along with momentary experiences of unbearable frustration, I
have also been absolutely enchanted by the European flair, sensibility,
global worldview, slower more embodied pace of the people, Cologne’s
beauty and marvelous progressive environment, and the kindness
I have been blessed to receive from so many strangers. At every
turn when I’ve been stuck and in need of assistance, there
has been someone to help me through. Sometimes, the assistance
has appeared before me, and in other situations, I’ve had
to seek it out. I appreciate both scenarios, for when I feel really
stuck, I am forced to identify my needs and find the most constructive
way to express them.
Many of my loved ones back in the U.S. who are concerned about
me being here “on my own” have inquired if I’m
meeting people, making friends, and developing sustainable connections.
While part of my healing includes cultivating a deeper internal
presence with myself during my six months away from it all in
the U.S., I am very grateful for the new friends I’ve made
in Cologne. In a short time, I’ve been invited to dinners
at the homes of new friends, to afternoon teas, to watch World
Cup games at private gatherings, to parties, to workout with friends
at the gym, to restaurants, and more. This kindness, which we
can all give to one another, and that I strive to gift in more
abundance, is a part of my medicine.
I’m able to receive treatments in Cologne due to the enormous
generosity of many loved ones, and yet I remember how impossible
it felt to ask for that help. With the encouragement of a good
friend and the assistance of another, I took the risk. I asked
for help. My family then asked for help. Some of my friends also
asked their friends and family for help. Through the enormous
web of inter-connectedness, the assistance came to me from many
directions.
I’m learning, and perhaps again on a deeper level, that
when I feel like I’m at the end of my rope, the rope’s
end is actually another beginning with tremendous possibility.
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