No tumor shrinkage was
visible through my MRI brain scan conducted on Tuesday, December
5, 2006. According to the black and white blurred image of my
brain, there are no measurable changes to my brain tumor after
six months of immunotherapy treatments at the Medical Center of
Cologne.
The MRI doesn’t measure cellular changes, and therefore
cannot capture how the immunotherapy treatments impacted the activity
of the brain tumor cells.
The radiologist told me I’ve had stable disease for the
last year and a half. Therefore, according to his reading, I already
had stable disease before the immunotherapy treatments. Since
low-grade disease is especially difficult to measure through MRI
scans, I am seeking out a second opinion of my scan results, and
from someone who speaks English fluently.
Of course I really wanted shrinkage, and I hoped for the ultimate
goal of tumor eradication. I was told both were possibilities
by the Medical Center of Cologne with 60 percent of brain tumor
patients with advanced disease experiencing partial reduction,
including 15 percent experiencing a complete response from the
immunotherapy treatments. Dr. Gorter said he has less experience
with patients who have low-grade disease, but said in general,
the consensus is that the smaller the tumor load, and the earlier
immunotherapy treatments are administered, the better. I therefore
thought that the likelihood I would respond was higher compared
to patients with advanced disease. I don’t know what expectations
were truly realistic. I am striving to understand the exact statistical
efficacy for cancer immunotherapy at the Medical Center of Cologne,
and in similar models. And as I investigate statistics, I know
that numbers do not capture truth.
Various cancer experts told me that dendritic cell vaccine therapy
was the most promising treatment approach for my condition. Published
research, including case reports and clinical trials, indicates
some efficacy against brain tumors with localized hyperthermia
and Newcastle disease virus. I now see the advice about dendritic
cell vaccine therapy in particular came from statistical models,
evaluations of systems, and perhaps medical trends, instead of
an assessment of my unique, individual health status. In the aftermath
of my scan results, I see much more clearly that my cancer therapies
must target my entire body with emphasis on detoxifying and strengthening
the whole of my internal terrain. This may well be one of the
most important lessons I learn in my life about healing through
cancer.
I wanted my scan results to show tumor shrinkage or eradication
for everyone affected by cancer. Nobody can guarantee what will
work for each individual. Treatment success depends on many factors.
I believe in improving health by activating and restoring the
immune system through immunotherapy. I believe in the potential
for life enhancement, and life extension with immunotherapy treatments.
Strengthening the immune system, and body’s innate healing
capacity, is a logical cancer treatment approach. Maybe this is
possible with dendritic cell vaccine therapy in some patients,
or perhaps there is a better way.
For many people affected by the disease, the healing process
through cancer is multifaceted. Healing occurs in phases. Sometimes
progress isn’t visible when progress has been made. Healing
has its own timing. Healing is a process, not a destination.
I am very grateful for all of the ways in which I’ve benefited
from my healing journey over the last six months. I am extremely
grateful to so many people for giving me the opportunity to receive
treatments in Cologne.
And yet, while so many people have given to me, and I’ve
given so much to my healing, more is required. I have struggled
since I received the scan results to understand where I’ve
been through my healing journey, how I arrived at my current destination,
and where I need to go next. Despite my current confusion, and
momentary sense of chaos, something in me has been more awake
in my vulnerability. Something in me has felt more alive. Something
in me is accessing the deeper recesses of what it is to be human.
Beyond the dark night of the soul, there is always greater light.
I will continue searching for answers. I will continue engaging
my healing process.
And I will continue to live my life more fully. Last night, I
went out with friends on the town in Cologne. I heard live music.
I danced. I had interesting conversations. I smiled a lot. I laughed.
I experienced affection. These are all essential ingredients in
my healing equation. |